Autism another thread

[shesulsa]

Thanks again Shesulsa...it is very much appreciated.

Better late than never, eh?

All my old links are on my old, crashed, computer and I truthfully forgot about this after a few days and with life's foibles.

But in light of some recent conversation I remembered your questions about proprioception and sensory issues. Another member here sent me this link.

Jean Ayers is the foremost authority on Sensory Integration which involves proprioception and all kinds of other fanciful words I can't remember right now.

Anyway, here are some other good links on the work of Jean Ayers and others:

http://www.esd189.org/autism/links2.html

http://mislabeledchild.com/TheMislabeledChild/Sensory_Processing_files/dsi.pdf

http://neurolearning.com/sensorylearn.htm

http://www.understandingautism.org/uaorg_5RESOURCES/UAORG_1treatment.html

I don't know how it works in Manitoba, but in the states, we have the Department of Developmental Disabilities where minors can be registered by their parents and receive some kind of services. I guess it takes a lot of tries to get in, because I'm on my fifth try, newly starting again after over six years.

If I may be so bold as to say, I'd like to give you some advice in being the aunt of an autistic child. Please know this advice comes from someone who has been hauling this load, for the most part, stark alone: If you want your nephew to succeed to the best of his abilities, then be there for his parents. Be as active as you can in supporting them, learning how they are caring for him, about his treatments, his strengths, his weaknesses, their strengths and weaknesses. Try to be somewhat involved in his "program." The more exposure he has to more people, the better chance he has at recovering to whatever degree he is able. Make yourself available to watch him while they go to dinner or the movies. Use this opporunity to teach your own children tolerance, love and the importance and power of family unity.

And if anyone in your family is having difficulty in resolving this "tragedy" in their lives, remind them that everything in life has meaning and when we start to despair and ask ourselves or God why something happens, we must remind ourselves that the simple answer is, "because." We must find, discern or assign a meaning in these challenges, else the purpose behind them is lost.

I've written a piece in General Self Defense on tracking devices and my experience with them, if your nephew is an elopement risk.

All my best to your family in this endeavor.

 

[Eternal Beginner]

Better late than never, eh?

All my old links are on my old, crashed, computer and I truthfully forgot about this after a few days and with life's foibles.

But in light of some recent conversation I remembered your questions about proprioception and sensory issues. Another member here sent me this link.

Jean Ayers is the foremost authority on Sensory Integration which involves proprioception and all kinds of other fanciful words I can't remember right now.

Anyway, here are some other good links on the work of Jean Ayers and others:

http://www.esd189.org/autism/links2.html

http://mislabeledchild.com/TheMislabeledChild/Sensory_Processing_files/dsi.pdf

http://neurolearning.com/sensorylearn.htm

http://www.understandingautism.org/uaorg_5RESOURCES/UAORG_1treatment.html

I don't know how it works in Manitoba, but in the states, we have the Department of Developmental Disabilities where minors can be registered by their parents and receive some kind of services. I guess it takes a lot of tries to get in, because I'm on my fifth try, newly starting again after over six years.

If I may be so bold as to say, I'd like to give you some advice in being the aunt of an autistic child. Please know this advice comes from someone who has been hauling this load, for the most part, stark alone: If you want your nephew to succeed to the best of his abilities, then be there for his parents. Be as active as you can in supporting them, learning how they are caring for him, about his treatments, his strengths, his weaknesses, their strengths and weaknesses. Try to be somewhat involved in his "program." The more exposure he has to more people, the better chance he has at recovering to whatever degree he is able. Make yourself available to watch him while they go to dinner or the movies. Use this opporunity to teach your own children tolerance, love and the importance and power of family unity.

And if anyone in your family is having difficulty in resolving this "tragedy" in their lives, remind them that everything in life has meaning and when we start to despair and ask ourselves or God why something happens, we must remind ourselves that the simple answer is, "because." We must find, discern or assign a meaning in these challenges, else the purpose behind them is lost.

I've written a piece in General Self Defense on tracking devices and my experience with them, if your nephew is an elopement risk.

All my best to your family in this endeavor.

I do appreciate your advice. Fortunately, in Manitoba my nephew has had fast and aggressive help set up by the government. It was a matter of three months from diagnosis to a program being set up in his own home to help him.

Your advice on being the "aunt of an autistic child" is welcome. I have discovered in the last few months just how much support my brother and sister-in-law need. From babysitting both my nephew when they need some time and watching their other child when all of the appointments with specialists were taking up a lot of their time. I am fortunate that my husband's family is a stong, cohesive unit with very strong faith that come together now and instead of mourning "what might have been" they are concentrating on "what can be". All of us that live close to them have attended seminars and have been "coached" by his teachers on how best we can help him.

We are very impressed with the program that my nephew is in. In fact, a little guy I help teach BJJ to won his division in the tournament we held today. From a boy who could hardly be touched last fall he went out and won his division!!! It really gave me a lot of hope. Seeing his face when he received his medal was priceless.

Again, thanks for your advice...it is VERY much appreciated.