Below is a cut/paste post he (marissa's father-Craig) put on our message board at Progressive Tactics. It is from April 4th. He updated it again on April 8th as 'improving' but this particular set back was worse then normal.
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Hello.
Once again it is time to update everoyone interested on Marissa.
Unfortunately this time the news isnt all that great. After a period of time completely seizure free that had actually set a record for the longest period without mediation and without seizures, Marissa slipped into the worst bout of epileptic activity she has seen ever. It has been a week, and at one point, she was seizing every hour betweenten and twenty to the hour--just like clockwork.
Her mother and I are at a loss, and have gone back to trying an old diet treatment. It has had some succss, her daylight time seems to be seizure free, but at night they return. We are frustrated and feel like we are running out of options, but we are not giving up.
Thak you all again for your concern. She is a special little girl, and a hell of a fighter, and I have no doubt that this too shall pass. Its just tough in the meantime.
Peace.
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Rissaroo (marissa) is still fighting the good fight, and everyone still believes in her. She has outlived all predictions the doctors have given her. She continues to be an inspiration.
Jen Marks, Marissa's mother, is currently doing a fund raiser selling some specialty foods she is making. NOW- I tease them all the time about being Vegans and eating tree bark, but the stuff she makes is no Tree bark, and some of it is actually VERY GOOD!
If anyone would like info on what foods are available, updates on Marissa, send well wishes, or to contact Craig Marks, please come by Progressive Tactics message board and drop a line.
http://pub41.bravenet.com/forum/3516627125/
Thanks to everyone who has listened to this, and helped out, prayed, or supported anyone who has gone through troubles like this. It is nice to know we are not alone!
Again, a personal Special thank you to Datu Hartman and Guro Rich Parsons.
Their volunteering to help out was Really inspirational to alot of people, and made a believer out of me! I have really made some good friends because of them and learned ALOT. Thank you gentlemen. I truly am grateful!
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